Friday update

I'm not sure what to write here.  I'm unhappy that we have to be here in Seattle again.  I think after this Henry will be much stronger.  Today they are going to check out some flow issues with his heart and maybe make some adjustments where necessary. Widen here, fix there.  He continues to drain a good bit of fluid. There was probably about 350ml built up around his lung and another 100 has drained overnight.

I've been sleeping in the room with Henry which is hard but my nice roomates gave me a bunch of tips to make it more comfortable.  I moved my bed around and asked for a foam topper for my bed which really helped. Even with all that it's really hard to be here.  I think I need help.  Maybe someone could come to Seattle and help watch Henry during the day or night so I could get some breaks and sleep?  I know Polly would but that would mean bringing at least Liam over which doesn't really simplify things.

How do you entertain a baby for days on end that has all this stuff attached to him and wants to kick and play and you only have 2 lousy toys.  The TV has been the most successful at distracting him.

- Rob out -